Community backs family in need of NDIS for little Aedan
FOR the Harris family, the prospect of the National Disability Insurance Scheme is bitter-sweet.
Aedan Harris, six, has Spastic Quadriplegic Cerebral Palsy and needs around-the-clock care and assistance.
His parents Donna and Cameron, and his sister Arianna, dedicate their lives to giving Aedan the best life he can have, but they cannot do it alone.
While the Harris' do receive Government assistance to help care for Aedan, the family set up a charity over a year ago to help bridge the gap between the money needed for Aedan's care and what the Government can give them.
"We're not raising money for luxury items, not a holiday or anything," Donna said.
"It's for therapy and special chairs or walkers so Aedan can go to the beach or sit up properly which helps with his bowels, hips and reflux."
Although they had only planned to raise $5,000 per year, the community has donated more than $24,000 since the charity began.
Cameron said the community helped his family more than the Government did.
Aedan is currently supported by the better start program, which provides children with disabilities with $12,000 between the ages of zero and seven.
"He's turning seven very shortly," Cameron said.
"There's a big gap between the NDIS being rolled out completely in 2019 and now."
The NDIS is set to start rolling out next year, but at a recent state conference, Disability Services Minister Coralee O'Rourke said Prime Minister Tony Abbott had indicated the state would only receive a proportion of the sum during the first two years.
Minister O'Rourke said if funding was rationed only 13,000 people out of the 97,000 eligible would be able to enter the scheme from July next year, leaving 62,000 people to enter during the final year.
"Without Aedan's funding, we would be out of pocket between now and then," Cameron Harris said.
If you wish to help the Harris family, go to